Man who lost sense of smell reveals how his accident led him to aid others

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A GUITARIST who lost his sense of smell as a result of a major brain injury in 2005 has revealed how it has led him to helping others.

Duncan Boak, 39, suffered brain damage after he fell down a flight of stairs cracking his head which resulted in the bruising of his brain.

Mr Boak, from Yorkshire, has revealed how the injury led to him walking away from a promising career as a musician to dedicate his time to helping others after he founded his charity Fifth Sense. 

Losing one of his major senses Mr Boak claims to have lost the ability to taste a range of things from freshly cut grass to petrol.

Duncan Boak - Health News Scotland
Duncan Boak, 39, suffered brain damage after he fell down a flight of stairs.

Aged 22, he and his bandmates took a break from recording their first studio album in Leeds and headed to a local nightspot called Mojo.

But while walking up the stairs, and still sober, Duncan slipped and fell backwards – he cracked his head at the bottom and was knocked unconscious.

Two days later he woke in hospital where medics confirmed bruising to his brain.

The guitarist remained an inpatient for two weeks and everything seemed fine after his speech, responsiveness and motor functions were deemed normal.

But after returning home and sitting down to a plate of his father’s risotto, Duncan realised he couldn’t smell it and then realisied he had lost one of his senses.

He admits the loss sparked a depression in his past but after overcoming his challenges is now helping others.

Speaking about the accident Mr Boak said: “Losing one’s sense of smell is more common than people think so it’s good for people to know they’re not alone.”

“It was the strangest thing – it’s not something I was immediately aware of even in hospital – but when I sat down to that plate of food I couldn’t smell it.

“It took a long time to adjust and while I know I’m lucky compared to other brain injury survivors it still isn’t without its impact on my life and others like me.

“I can still taste things too – my friends and family actually think I’m a really good cook because I find that I probably use seasonings a little more creatively than most people so I can enjoy food.

“People often ask if I miss smells but the truth is I simply miss being able to smell of being close to someone else like with a hug.

“It’s something you really don’t appreciate until it’s gone.

“And unfortunately I think the last smell I can probably remember is cigarettes – probably because at the time you could still smoke in pubs and that’s where I was when I had my accident.”

Duncan founded charity Fifth Sense, the charity for people affected by smell and taste disorders, and spoke about his own experience ahead of the virtual Digby Brown 2021 Head Injury Information Day on Wednesday 12 May.

Fifth Sense, founded in 2012, provides a range of support and information to people affected by smell and taste disorders and educates public and professionals on the impact of these conditions.

Speaking of the impact on his mental health Mr Boak said: “I’m not going to lie, I found it tough. I was pretty depressed and isolated myself.

“But after a few years I was just sort of struck by a new perspective and gratitude for what I do have.

“So now I’m committed to working with like-minded people and professionals to make sure the right support is there.

“Things like double-checking cookers to make sure the gas is definitely off.

“Even during the last year when loss of smell was identified as a symptom of COVID-19 we took extra steps to ensure sure those who already couldn’t smell had access to sound advice.

“It’s certainly a unique condition. Many people think it’s not a big deal when considered alongside other sensory deprivations such as sight or hearing but it’s about what is unique and impacting the individual to make they are supported.

“Because trust me – if you lose your sense of smell, you’ll miss it more than you can imagine.”

The charity is currently leading a Priority Setting Partnership with the James Lind Alliance, part of the National Institute of Health Research, to give its beneficiaries the opportunity to influence future research.

Chris Stewart, Partner at Digby Brown and host of the 2021 Head Injury Information Day, added: “Duncan’s story is remarkable but what surprised me was how common it is.

“A brain injury can affect people in so many different ways and Duncan’s story is a good example of why rehabilitation must be tailored to the individual’s needs.”

If you or a loved one has been affected by a brain injury and would like more information then visit https://www.hiid.org.uk/